Fatal Family Insomnia
symptoms submit a link
DNA testing for diagnosis?
PubMed Central
According to these scientists, until genetic testing becomes much less expensive, there are better ways to diagnose fatal familial insomnia.
Click on “listen” to hear a discussion with an author of a book on fatal familial insomnia. Hear him describe the prions causing this terrible disease.
This straightforward article recounts how Dr. Ignazio Roiter tracked down the fatal familial insomnia that has killed people in his wife’s family for generations.
Learning about fatal familial insomnia
Alzheimer Europe
Here is a quick but complete explanation of fatal familial insomnia.
causes submit a link
Mutation in action
YouTube
Watch this brief video to go inside chromosome 20 and see the point mutation that causes fatal familial insomnia.
Finding a disease, seeking a cure
New York Times
Read this excellent comprehensive article on the discovery of and continuing research into fatal familial insomnia.
Pummel the prion diseases!
Article Click
Fatal familial insomnia is related to Mad Cow disease and Alzheimer’s. A cure for FFI could also mean a cure for these more common diseases
Global fatal familial insomnia
Archives of Neurology
Although the first case of fatal familial insomnia was found in Italy, this occurrence in a Chinese family shows it is a global phenomenon.
alternatives submit a link
Sleep and self-awareness
Serendip
The neurological basis of the self (the I-function) is examined within the context of fatal familial insomnia. Learn how sleep is part of who you are.
One man’s search for sleep
Medscape
This case study documents the treatments of a man with fatal familial insomnia, from vitamins to electroconvulsive therapy. The site requires free registration.
Is it worse to know?
Sage Publications
This study suggests that being DNA tested for fatal familial insomnia may be psychologically beneficial even if you are a carrier of the lethal mutation.

